Improving Quality of Life and Quality of Care in Lennox-Gastaut Syndrome

April 8, 2025

 

Lennox-Gastaut syndrome (LGS) is a severe epileptic encephalopathy with early childhood manifestations that results in developmental delays, behavioral issues, and cognitive dysfunction. Alongside treatment-resistant seizures, patients with LGS experience a wide range of non-seizure symptoms that severely impact quality of life for both the patient and their caregiver. In addition to caring for seizures and non-seizure symptoms, clinicians must collaborate with a multidisciplinary care team to develop long-term care plans for patients with LGS, particularly as patients transition from pediatric to adult care.

In this live webcast, expert faculty will elucidate the recognition of non-seizure symptoms associated with LGS and their impact on patient and caregiver quality of life as well as guide learners through developing long-term care plans for patients with LGS in collaboration with their caregivers and the interdisciplinary care team.

Target Audience

This activity is for pediatric and adult physicians, physician associates, nurses practitioners, and nurses in neurology, primary care, and long-term care settings and caregivers of patients with LGS.

Learning Objectives

At the conclusion of this activity, learners will be able to better:

  • Recognize non-seizure symptoms associated with LGS and their impact on patient and caregiver quality of life
  • Develop long-term care plans for patients with LGS in collaboration with their caregivers and the interdisciplinary care team
  • Integrate strategies for smooth transitions from pediatric to adult care into your management plan for patients with LGS

This program is supported by an independent medical education grant from Jazz Pharmaceuticals.

Course summary
Available credit: 
  • 1.00 AAPA Category I Self-assessment
  • 1.00 AMA PRA Category 1 Credit™

    Boston University Chobanian & Avedisian School of Medicine designates this Live activity for a maximum of 1.00 AMA PRA Category 1 Credit™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

  • 1.00 ANCC
    • 1.00 ANCC Pharmacology
  • 1.00 Participation
Course opens: 
04/08/2025
Course expires: 
04/08/2025
Event starts: 
04/08/2025 - 6:30pm EDT
Event ends: 
04/08/2025 - 7:30pm EDT
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r. Douglass reports no financial relationships to disclose.

Dr. Noviawaty reports the following financial relationships:

Research Support: Marinus Pharmaceuticals, Inc.; SK Life Science, Inc.; and UCB, Inc.

Ms. Griffin reports no financial relationships to disclose.

The following individuals have no financial relationships to disclose:

Jeffrey Helfand, DO (Peer Reviewer)
Shirley Michelle Franks, MSN, APRN, FNP-BC (Peer Reviewer)
Andrea Edwards, PA-C (Peer Reviewer)
Keshia Pitt, PhD (Planning Committee)
Chelsey Goins, PhD (Planning Committee)
Scott J. Hershman, MD, FACEHP, CHCP (Planning Committee)
Sandra Caballero, PharmD (Planning Committee)
Sharon Tordoff (Planning Committee)
Natalie Sanfratello, MPH, CHCP (Planning Committee)
Alison Li, MPH (Planning Committee)

In support of improving patient care, Boston University Chobanian & Avedisian School of Medicine is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

 

Boston University Chobanian & Avedisian School of Medicine designates this Live Activity for a maximum of 1.0 AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

 

Nursing Contact Hours: 1.0 of which 1.0 are eligible for pharmacology credit

 

 

Physician Associates (AAPA) 1.0

Boston University Chobanian & Avedisian School of Medicine, has been authorized by the American Academy of PAs (AAPA) to award AAPA Category 1 CME credit for activities planned in accordance with AAPA CME Criteria. This activity is designated for 1.0 AAPA Category 1 CME credits. Approval is valid until 2/12/2027. PAs should only claim credit commensurate with the extent of their participation

Available Credit

  • 1.00 AAPA Category I Self-assessment
  • 1.00 AMA PRA Category 1 Credit™

    Boston University Chobanian & Avedisian School of Medicine designates this Live activity for a maximum of 1.00 AMA PRA Category 1 Credit™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

  • 1.00 ANCC
    • 1.00 ANCC Pharmacology
  • 1.00 Participation
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THESE MATERIALS AND ALL OTHER MATERIALS PROVIDED IN CONJUNCTION WITH CONTINUING EDUCATION ACTIVITIES ARE INTENDED SOLELY FOR PURPOSES OF SUPPLEMENTING CONTINUING EDUCATION PROGRAMS FOR QUALIFIED HEALTH CARE PROFESSIONALS. ANYONE USING THE MATERIALS ASSUMES FULL RESPONSIBILITY AND ALL RISK FOR THEIR APPROPRIATE USE. TRUSTEES OF BOSTON UNIVERSITY MAKES NO WARRANTIES OR REPRESENTATIONS WHATSOEVER REGARDING THE ACCURACY, COMPLETENESS, CURRENTNESS, NONINFRINGEMENT, MERCHANTABILITY OR FITNESS FOR A PARTICULAR PURPOSE OF THE MATERIALS. IN NO EVENT WILL TRUSTEES OF BOSTON UNIVERSITY BE LIABLE TO ANYONE FOR ANY DECISION MADE OR ACTION TAKEN IN RELIANCE ON THE MATERIALS. IN NO EVENT SHOULD THE INFORMATION IN THE MATERIALS BE USED AS A SUBSTITUTE FOR PROFESSIONAL CARE. IN NO EVENT SHOULD INFORMATION IN THE MATERIALS REGARDING LAWS, REGULATIONS, OR LEGAL LIABILITY BE CONSIDERED LEGAL ADVICE OR USED AS A SUBSTITUTE FOR CONSULTING WITH AN ATTORNEY.