Clinical Update 2024: Equity at the Heart of Care: Supporting Students with Diverse Medical Needs
Ready to boost your care for students with medical complexity through interactive, case-based learning with expert guidance? |
The 2024 November Clinical Update is designed to enhance the skills and knowledge of school nurses who care for students with medical complexity.
This interactive, case-based, learning experience will:
- Highlight key touchpoints in care coordination and planning for students with medical complexity and strengthen the learners' understanding of how to approach them with an equity lens.
- Build recognition of students and their caregivers as the experts in their care.
- Feature medical and nursing expert faculty to share guidance on successful approaches to delivering equitable and high-quality care.
- Highlight available resources for school nurses striving to provide high-quality and equitable care for students with medical complexity.
Target Audience
School nurses, School Health Professionals
Learning Objectives
At the end of this activity, the learner should be able to:
- Apply knowledge gained from case scenario activity and expert guidance to provide equitable care to students with medical complexity in their own practice.
- Explain the importance of honoring the expertise of students and caregivers when planning and implementing care for students with medical complexity.
- Assess the readiness of individual practice settings to provide complex care and address barriers encountered by families who are trying to access education and health care.
- Describe evidence-based approaches to initiating care planning and delivery for students with medical complexity in the school setting.
- Identify strategies to meet the complex care needs of students and mitigate barriers to care encountered by families.
- Recognize resources available to them in their individual regions and statewide to plan and deliver care for students with medical complexity.
Note this agenda is subject to change
Time | Topic |
---|---|
9:00 AM - 9:10 AM | Opening and Introductions |
9:10 AM - 9:25 AM | Learning Activity Overview & Introduction to the Case |
9:25 AM - 9:50 AM | Breakout Rooms & Debrief |
9:50 AM - 10:20 AM | Caregiver and Student Voice |
10:20 - 10:40 AM | Case Activity |
10:40 - 10:50 AM | BREAK |
10:50 AM - 11:20 AM | Shriner's Children's Hospital Provider Panel |
11:20 AM - 11:50 AM | Case Update, Breakout Rooms & Debrief |
11:50 AM - 11:55 AM | BREAK |
11:55 AM - 12:35 PM | School Health Experts |
12:35 PM - 12:45 PM | Review of Massachusetts State Resources |
12:45 PM - 1:00 PM | Wrap Up |
Boston University Chobanian & Avedisian School of Medicine asks all individuals involved in the development and presentation of Accredited Continuing Education activities to disclose all financial relationships with ineligible companies. This information is disclosed to all activity participants prior to the start of the educational activity. Boston University Chobanian & Avedisian School of Medicine has procedures to mitigate all relevant financial relationships with ineligible companies. In addition, faculty members are asked to disclose when any unapproved use of pharmaceuticals and devices is being discussed.
In accordance with the Standards for Integrity and Independence in Accredited Continuing Education, all relevant financial relationships that faculty, planners, authors, and anyone who may be in control of content have with ineligible companies have been mitigated.
Faculty
Aubrie Galinis, BA
Aubrie Galinis, BA, has no relevant financial relationships to disclose.
Aubrie Galinis (she/her/hers) is a 24-year-old, first-year, Health Informatics master’s student studying remotely at the University of Pittsburgh. She is a collaborator and presenter at this year's Clinical Update: Equity at the Heart of Care: Supporting Students with Diverse Medical Needs with Dr. Brenna Morse. At 9 months of age, Aubrie was diagnosed with a rare neuromuscular disability called Spinal Muscular Atrophy (SMA). Due to her complex condition, she uses a wheelchair full-time and has 1-on-1 skilled nursing. As an individual who relies on skilled nursing to be active within the community and her education, Aubrie is passionate about educating current and future nurses—specifically about patient/family autonomy and collaboration. In her free time, Aubrie likes to play video games, do crafts and 3D printing projects, and explore local places.
Brenna Morse, PhD, FNP-BC, NCSN, CNE, PMGT-BC, FNASN, FAAN
Brenna Morse, PhD, FNP-BC, NCSN, CNE, PMGT-BC, FNASN, FAAN, is a Clinical Advisory Board Member at NenHealth.
Brenna Morse is an associate professor at the MGH Institute of Health Professions and a nurse practitioner at Boston Children's Hospital. She is board-certified as a family nurse practitioner, nationally certified school nurse, nurse educator, a pain management nurse, and is a fellow in the National Academy of School Nursing and American Academy of Nursing. Recognizing a significant gap in nursing science and resources for children with complex conditions in pain, Brenna has been committed to ensuring equitable and inclusive pain care for this population. Additionally, her efforts have centered on empowering parents as recognized experts in their children’s care and fostering meaningful team partnerships between parents, clinicians, and school professionals. Brenna leveraged her national affiliations and leadership roles to drive positive change and create more inclusive school nursing organizations. In this area, she has led courageous conversations to address controversial topics in pursuit of organizational actions and policies that facilitate justice and equity in school nursing. Brenna holds a BSN and MSN from UMass Lowell (2011, 2021), and an MSN and PhD from UMass Boston (2013, 2015).
Heather Engholm, MPH, BSN, RN, CPN
Heather Engholm, MPH, BSN, RN, CPN has no relevant financial relationships to disclose.
Heather Engholm, MPH BSN RN CPN, is a nurse with MASSTART, a Title V program funded through the MA Dept. of Public Health that provides consultation services to families and schools on health care planning for children with special health care needs (including children supported by medical technology) to ensure their well-being and safety while attending school.
In addition to her role as a MASSTART nurse, Heather works with the Community Education Initiative at Boston Children's Hospital to plan professional development for school staff and community providers on clinical, wellness, and mental health topics. Over the past 8 years, Heather has given numerous presentations regionally on “Health Care and Emergency Planning for Students With Special Health Care Needs” and “Supporting Students with Medical Technologies in the School Setting”.
In 2019, Heather co-authored a chapter on “Children Assisted by Medical Technology in Educational Settings” in the National Association for School Nurses most recent edition of their textbook: School Nursing A Comprehensive Text.
In 2022, Heather began working as a nurse faculty member for the LEND (Leadership Education for Neurodevelopmental and Related Disabilities) fellowship at Boston Children’s Hospital, where she was previously a fellow from 2017-2018.
Heather’s previous nursing experience includes working in school nursing, a pediatric homecare, and in a NICU/Special Care Nursery. Heather received her Bachelor's of Science in Nursing from the University of Connecticut in 2012 and her Master's in Public Health from the University of Massachusetts Lowell in 2018.
Luz Eneida Garcia
Luz Eneida Garcia has no relevant financial relationships to disclose.
Luz Eneida Garcia, Puerto Rican, single mother of 3 adult men, moved from Puerto Rico to Northampton, MA 30 years ago to access better healthcare services for her son Freddy who has moderate to severe cerebral palsy. Motivated by the desire to offer Freddy a better quality of life, Eneida went back to college to learn English to be able to advocate for Freddy’s rights in the school system, the health care services, and the community where he belonged. After advocating for Freddy’s rights for many years, Eneida realized that her heart was in human services and not in business administration. At the present, Eneida is a care coordinator for the Department of Public Health. She informs, coordinates services, makes referrals to appropriate programs, supports, and advocates for families with children and youths with special needs.
George Gorton, PhD
George Gorton, PhD has no relevant financial relationships to disclose.
George Gorton is the Northeast Market Director for Strategy and Business Development at Shriners Children’s, where he has dedicated over three decades to enhancing healthcare services for children with special health needs. In his current role, George oversees comprehensive business development efforts across the health system’s northeast market, utilizing sophisticated data systems to evaluate and implement initiatives aimed at expanding access to care and improving treatment outcomes.
Since joining Shriners Children’s in 1991, George has progressed through various key positions, including Director of the Motion Lab and Business Development Director. His extensive experience in clinical gait analysis has positioned him as a leader in the field, contributing significantly to advancements in patient care and research.
George holds a Ph.D. in public health and epidemiology and possesses a strong foundation in biomedical engineering. He directed the Movement Analysis Center at Shriners Children’s New England for 25 years, where he played a pivotal role in analyzing and improving the movement patterns of children with conditions such as cerebral palsy. As a co-investigator in numerous studies over the last 15 years, he has focused on treatment outcomes for pediatric patients, authoring or co-authoring over 35 peer-reviewed publications.
In addition to his research endeavors, George is skilled in patient-reported outcome measures, including the PROMIS measures, and has specialized training in clinical research administration, data management, and statistics. His expertise not only enhances the strategic planning process within Shriners Children’s but also aligns with his commitment to addressing the social determinants of health that impact children with special health needs.
Lael M. Luedtke, MD
Lael M. Luedtke, M.D., serves as the medical director of Shriners Children’s New England. She is an accomplished pediatric orthopedic surgeon with 23 years of experience. Prior to joining Shriners Children’s New England in 2022, she served as medical director of Shriners Children’s Twin Cities.
Dr. Luedtke earned her medical degree and completed her residency in orthopedic surgery from the University of Minnesota. She completed a fellowship in pediatric orthopedic surgery at Children’s Hospital of Philadelphia. She is board-certified by the American Board of Orthopedic Surgery. Dr. Luedtke is a member of the Pediatric Orthopedic Society of North America, the Scoliosis Research Society, and the American Academy for Cerebral Palsy and Developmental Medicine. Areas of special interest to Dr. Luedtke include early onset scoliosis, surgery for cerebral palsy, hip replacement surgery, and limb deficiencies.
CNE Nurse Planner
Erin Sivak, MSN, BSN, RN
SHIELD Assistant Director
SHIELD Program Manager: Lesly Zapata, MPH
In support of improving patient care, Boston University Chobanian & Avedisian School of Medicine is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
Nursing Contact Hours: 4.00 contact hours, of which 0 are eligible for pharmacology credit.
SHIELD is a DESE-approved provider for PDPs. PDP certificates are issued for programs/series lasting 10 or more hours on a topic. CNE certificates are also issued for eligible courses. Learners may use CNE certificates toward PDPs.
Available Credit
- 4.00 ANCC
- 4.00 Participation
Price
Cancellation Policy
Substitution requests can be made until October 29, a week before the event. Substitutions made on the day of the event will be required to pay the course fee. Refunds will be issued for all cancellations received a week before the start of the meeting. Should cancellation occur within the one-week window, a credit will be issued, not a refund. Credits will be honored for up to two years. “No shows” are subject to the full course fee. Cancellations/substitution(s) must be made in writing by emailing shieldbu@bu.edu. Refunds or credits will not be issued once the conference has started. This course is subject to change or cancellation.
Disclaimer
THESE MATERIALS AND ALL OTHER MATERIALS PROVIDED IN CONJUNCTION WITH CONTINUING EDUCATION ACTIVITIES ARE INTENDED SOLELY FOR THE PURPOSES OF SUPPLEMENTING CONTINUING EDUCATION PROGRAMS FOR QUALIFIED HEALTH CARE PROFESSIONALS. ANYONE USING THE MATERIALS ASSUMES FULL RESPONSIBILITY AND ALL RISK FOR THEIR APPROPRIATE USE. TRUSTEES OF BOSTON UNIVERSITY MAKES NO WARRANTIES OR REPRESENTATIONS WHATSOEVER REGARDING THE ACCURACY, COMPLETENESS, CURRENTNESS, NONINFRINGEMENT, MERCHANTABILITY OR FITNESS FOR A PARTICULAR PURPOSE OF THE MATERIALS. IN NO EVENT WILL TRUSTEES OF BOSTON UNIVERSITY BE LIABLE TO ANYONE FOR ANY DECISION MADE OR ACTION TAKEN IN RELIANCE ON THE MATERIALS. IN NO EVENT SHOULD THE INFORMATION IN THE MATERIALS BE USED AS A SUBSTITUTE FOR PROFESSIONAL CARE. IN NO EVENT SHOULD INFORMATION IN THE MATERIALS REGARDING LAWS, REGULATIONS, OR LEGAL LIABILITY BE CONSIDERED LEGAL ADVICE OR USED AS A SUBSTITUTE FOR CONSULTING WITH AN ATTORNEY.
Special Services
Boston University strives to be accessible, inclusive and diverse in our facilities, programming and academic offerings. Your experience in this event is important to us. If you have a disability, require communication access services for the deaf or hard of hearing, or believe that you require a reasonable accommodation for another reason please contact the BU-CCE Office at least 3 weeks prior to the event to discuss your needs. Please contact us at cme@bu.edu.
Copyright
This material is copyrighted by the Massachusetts Department of Public Health (MDPH). MDPH grants permission for use of these materials for non-commercial educational use only, provided credit is given to the MDPH. Modification of content is permitted only with prior approval of the MDPH School Health Services.